Monday, June 16, 2014

Buying Time

There is good news, great news and crappy news and It's taken me a bit to process it all.

I thought that an update was due.  Do you remember that old saying when we were kids 1, 2 skip a few, 99, 100?  Well this update will be very similar to that, several things have happened in-between all of this but it will be left unsaid, so the Cole's notes are as follows:

The good news:  The MRI showed no growth on the tumour.  Hooray!!!  So at the moment Honeycomb is just hanging out, he is still reeking havoc on my head and body, but he has not grown. I'll take that.

The great news:  radiation has been put on hold.  To be honest that scared me more then brain surgery, at least with brain surgery I was asleep.  Since the tumour is stable, we are going to wait to radiate.

The crappy news:  radiation is not quite what I imagined it to be.  My thought process was that they would radiate the tumour, it would shrink and poof it would disappear.  I would feel better and life would get back to normal.  Nope, that is not the case for me.  My tumour is in a crappy location, we already know this.  However, from what I understand, radiating Honeycomb is kind of a one shot deal.  We don't really want to radiate that part of the brain more then once.  Radiation can affect surrounding good brain tissue (Good Lord we don't want that).  Radiation doesn't "last" forever.

So at the moment we are buying time.  The longer the tumour stays stable the more time I get before radiation has to be done.  Here is a completely made up scenario:  they radiate at the age of lets say 45 and radiation only keeps the tumour quiet for 10 years, then what in the heck am I going to do at 55?  See where we are going with this?

A neurologist is my next stop and I'm also adding a Naturopath Doctor as well.  Adding people to help me buy time can only be a good thing.

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